This thesis explores disability as a relational model and how stigma is produced within an Egyptian domain. This study focuses not only on People with Disabilities (PWDs) but rather on their primary caregivers i.e. parents and siblings. I examine how stigma affects the relationship between caregivers and their disabled family members. I also explore how some relatives run the risk of being stigmatized themselves by association develop a "stigmaphile response". Thus, exploring the notion of concern that is inevitable in caregiver-PWD relationship and how this embodies individuals into new subjectivities under society's control. Furthermore, this thesis aims at finding a way to combat the stereotypes that arise from being associated with PWDs and also aims at shifting people's perspectives into considering that disability should not be categorized it is too diverse and many aspects which differ from one disability to the other thus cannot be categorized in to a "new gender". My goal is to help find a way to eradicate the "shame" that surrounds the word "disability" in order for individuals to be able to enjoy a quality of life without fear, blame and exclusion.
Cynthia Nelson Institute for Gender and Women's Studies
MA in Gender & Women's Studies
Committee Member 1
Committee Member 2
The author retains all rights with regard to copyright. The author certifies that written permission from the owner(s) of third-party copyrighted matter included in the thesis, dissertation, paper, or record of study has been obtained. The author further certifies that IRB approval has been obtained for this thesis, or that IRB approval is not necessary for this thesis. Insofar as this thesis, dissertation, paper, or record of study is an educational record as defined in the Family Educational Rights and Privacy Act (FERPA) (20 USC 1232g), the author has granted consent to disclosure of it to anyone who requests a copy.
Institutional Review Board (IRB) Approval
Approval has been obtained for this item
(2020).Caregivers and people with disabilities: relational embodiment of stigma and concern in Egypt [Master's Thesis, the American University in Cairo]. AUC Knowledge Fountain.
Omarah, Nahla. Caregivers and people with disabilities: relational embodiment of stigma and concern in Egypt. 2020. American University in Cairo, Master's Thesis. AUC Knowledge Fountain.